A tremendous amount of things have happened since my last blog post. It has all been a lot to think about and I honestly didn’t even know where to begin. The best way I could think of summing things up was by creating a chronological list. In my last update I discussed my new diagnosis…
Life is a crazy thing. It is so beautiful, magical, precious… It is so painful, numbing, and crushing. It tears apart every piece of you, yet creates a spectacular masterpiece of who you really are. This Monday at CHOW I had more brush strokes added to my masterpiece. I had my appointment with Dr. Kovacic,…
It feels so good to be back to updating my blog. My last post was written by my amazing Mom, as I was very ill at the time. A lot has happened since the last update… Things have been a bit crazy! Since my last post, I have been in the hospital yet again. My…
More unexpected challenges and an opportunity to share the wonderfulness of AFCH… An update from Isabelle’s Momma. These past two weeks have not gone as smoothly as we would have liked. Two steps backwards is what we have been facing.
Dear Mom, I am totally confident you know how to plant a tree. You know everything about the process, even from how the seed sprouts. You know what helps it to blossom. It is the water, nutrients, sunlight, and so much more. It is the whole “nurturing gift”. That is how I see you in…
Today I rest, I breathe, I catch up on school work, I center myself. I rest because these past few days have seemed so huge. When I think of these most recent events my mind flashes to the beginning of it all. On Tuesday I had my appointments with the Hem/Onc department at AFCH.
Emptiness Turns to Hope I have been spending a lot of time processing our visit to Nationwide. I don’t really know what to think of it… It makes me feel lost in this tornado when I try to decipher what everything meant. To say the least, it did not go at all as I expected.…
Magical Strings As I am sure all of you know my family and I have been waiting to get into Nationwide again. That is what has been holding us back from making any progress. Until we were going to have a plan from them, we were just going to continue to tide me over. I really…
One Week This past week has been one of the craziest weeks… What it has been full of is a whirlwind of things: Two hospital admissions Two visits to the Emergency Department One allergic reaction to a drug An infection at the site of my PICC line A clot in my left shoulder area due…
Instincts The past three days in the hospital felt like five days. It is odd how time is almost nonexistent when your mind is so focused on something. My team of doctors and nurses had the goal of relieving my abdominal pain and pressure during that stay. I was in full attack mode, ready to…