The JAKE Foundation

“Jachin’s Angel Kises Everywhere” The JAKE Foundation raises incredible awareness for Sturge-Weber Syndrome, while creating joy for so many other individuals battling debilitating illnesses. I know they create joy for others as my family and I are actually a recipient of their passion. This winter my Make-A-Wish to see the mountains and be with my…

A Nasty Disease

A Nasty Disease

“Sometimes carrying on, just carrying on, is the superhuman achievement” Chronic Intestinal Pseudo Obstruction is an ugly disease. That’s all that can be said about it. It’s an ugly, awful disease. It’s a hateful disease. I don’t like using such strong words but sometimes they are what is needed. There are only 200 cases of…

Yellow

“Yellow is seen as a color of hope, happiness, and sunshine. It exudes positivity, energy, freshness, clarity…” Sunshine is such a gift in life. It is something that lifts everyone’s mood and creates a happy ambiance in the air. To have sunshine, clouds have to part. Sometimes these clouds can be heavy with moisture and…

6/six/VI

My medical team and I tried everything. The usual and the peculiar. Everything from pharmaceutical medications to natural acupuncture. We prayed. We cried. We laughed. We mourned. We did all of this because over a year ago I was hospitalized due to another organ failing my body. We realized that this beast of an illness…