October has been another month full of uphill battles, tears, bits of victory, and trying to find the joy in things. It has brought the beautiful fall weather and colors, but has also landed me in the hospital two times to get my diseases under control. It has brought me more time with friends and…
Bittersweet I have been home now for a little over a week. Being home has been very nice. Its been a massive amount of adjusting and organizing supplies. We have been doing lots of practice with my new medical needs and requirements. We are very thankful for the UW Home Health Nurses and their consistent…
Blessing I have been told that it “takes a village” my whole life. I’ve been raised to think that “the more the merrier”… As I have grown up and become a young woman I can personally account that those phrases are not enough to describe the beauty I have encountered in the recent months. I…
Be patient and good vibes only… That has been the mentality that has allowed me to survive his past week. It has been honestly a hard, hard, hard week. But we made it! On Monday September 12 I underwent my three hour surgery to get my ileostomy. As it was mentioned in the last post,…
“The hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles” Christopher Reeve Isabelle is resting comfortably after her three hour surgery today. The team at CHW was amazing today. Really on their A Game, as usual. Dr. Arca was flawless in her surgery and Isabelle…
“Jesus turned around, and when He saw her He said, “Daughter, be encouraged! Your faith has made you well’”- Matthew 9:22… Card from my sweet friend Ciara As I currently attempt to do this post I am resting in my hospital bed with my heating pad surrounded my momma and my aunt. We are focusing…
Small Taste of Freedom I love my home. I am a homebody, and I am passionate about being one. I love being able to enclose myself with a blanket and watch a good movie. I simply love home. I am currently home for a beautiful weekend pass. I get to spend some much needed time…
Hospital Days on Hospital Days Today mark 15 days of being away from home and being at Children’s Hospital of Wisconsin. I can not even begin to explain what a case of the hospital blues my mom and I are having. Today has been a day full of my desire to chuck my IV pole…
“…Its a Miracle…” “The Lord is close to the broken-hearted and saves those who are crushed in spirit” Psalm 34:18 I think even the strongest people have moments where enough is simply enough. Our spirits are so strong but we all need moments to just breathe. To heal for a moment. To live with a…
Hanging On Today has been yet another day of the hospital flow. Yes, that’s correct, I am in the hospital again. This journey is constantly proving to show how volatile this situation is. This Tuesday I had my appointment with the amazing Chelimsky duo at Children’s Hospital of Wisconsin. My dad, mom, and I all…