Grief. I have known this emotion since the age of 13. My life changed forever after my chronic illnesses took an eternal presence in my life. I have grieved daily since I was only 13 years old. It has never stopped. Grieving the fact I have had two surgeries since this summer, with the discussion…Details
Life is such a wild roller coaster. It has the highest of highs. Living life to its fullest. Experiencing new adventures. Days of no pain and only bliss. New friendships. Being alive. Happiness. Health. Stability. Peace. It also has the lowest of lows. Illnesses. Pandemics. Uprisings against horrible social injustices and human rights issues.…Details
The last time I posted on here was at the end of February, discussing the fact that motility issues were creeping back into my life once more. At that time, that issue was concerning and overwhelming. I had no clue what was to come in the following months- none of us did. I will…Details
you do not just wake up and become the butterfly growth is a process- rupi kaur🦋🦋🦋🦋 In August of 2018 my life changed forever. After months of high dose IVIg I regained motility in my gut. We watched miraculously as every test came back normal. My health was returning. I was eating with zero discomfort.…Details
I have always thought of life as a story. Its words, pages, and chapters describe the odyssey of our existence on Earth. The novel contains the highs, the lows, the crevices in between. Coming to college has been the most awakening chapter yet. I have lived in a different realm of life. Living on my…Details
At the end of the day we are all human. We strive for the best, but often times make mistakes. I admit that I make mistakes all the time, often times everyday. Pouring the wrong milk in my iced coffee, being impatient with something, feeling frustrated over things I should not… This summer I made…Details
Today I closed the chapter of high school after five years. When I started high school I had a master plan. Specific courses I wanted to take, striving to get into UW-Madison, aspiring to grow as an individual, dreaming of growing academically, and much more. Once my sophomore year came, the plan quickly became different.…Details
I am a Badger!
An eternal thank you to all of the teachers, academic staff, and medical staff who have supported me along the way. It is official, UW-Madison here I come!
On May 16th, I am hoping for a successful take down of my ileostomy. Patients that are medically complex with chronic rare diseases are familiar with facing the unknown. Every treatment, surgery, and therapy is decided based on knowledgeable guesses. There are no outlines or recommended plans. There is no documentation of patients like them,…Details
In life, there are countless choices that I have made. Most have been simple, from choosing which class to take to happily choosing what to drink at Colectivo. Lately the choices have been more complicated. Looking at this transplant center versus a different one. Taking this medication with these side effects versus another with a…Details