I am a Badger!
An eternal thank you to all of the teachers, academic staff, and medical staff who have supported me along the way. It is official, UW-Madison here I come!
On May 16th, I am hoping for a successful take down of my ileostomy. Patients that are medically complex with chronic rare diseases are familiar with facing the unknown. Every treatment, surgery, and therapy is decided based on knowledgeable guesses. There are no outlines or recommended plans. There is no documentation of patients like them,…Details
In life, there are countless choices that I have made. Most have been simple, from choosing which class to take to happily choosing what to drink at Colectivo. Lately the choices have been more complicated. Looking at this transplant center versus a different one. Taking this medication with these side effects versus another with a…Details
Dear 2018… Oh where do I even begin? You brought more than anyone could have ever imagined… You brought storms of Herculean strength- volatile and treacherous. You brought the most beautiful moments of clarity and peace. You brought moments of agony and pain. You brought moments of pure heaven on earth. You brought it all-…Details
Yesterday was a challenging day… for the first time this year I had to leave classes at school early due to feeling unwell. I woke up today invigorated for a fresh start, a new day. I had my Headache Clinic today where I got another round of my Botox injections to help with my chronic…Details
Dream as if it is and it will be Wednesday, August 29th, I was scheduled for an hour long surgery to close my GJ gastrocutaneous fistula, and irrigate my colon. The surgery ended up being two and a half hours, but was an overall success. It was going to be a quick recovery. I was…Details
Life is a constantly evolving journey. It is a rapid and violent tornado. It is a magnificent sunrise shimmering down on the fresh dew drops on lush blades of grass. It is the tears, the laughter, the screams for help, the healing hand. It is a composition of tunes of emotions that create a melody.…Details
Four rounds of IVIG. Each round spaced four weeks apart. All with hopes of a change for the better. However instead of better, we have a MIRACLE! A true miracle from God. Last week I had my manometery study. From the moment everyone looked at the testing screen people were in shock. We saw lines.…Details
In the summer of 2016 my life saw the walls of a hospital room for over a 100 days, a result of stays that lasted from July through September. It was the first time I was informed of being in intestinal failure. It was when we learned of genetic mutations that meant we were dealing…Details
“Every now and then it’s good to stop climbing and appreciate the view from right where you are” Lori Deschene As I sat this morning viewing the scenic northern woods, doing all of my medicines and medical cares, my mind was buzzing. This time of year is full of the words college, finals, graduation, late…Details