My medical team and I tried everything. The usual and the peculiar. Everything from pharmaceutical medications to natural acupuncture. We prayed. We cried. We laughed. We mourned. We did all of this because over a year ago I was hospitalized due to another organ failing my body. We realized that this beast of an illness…
Grateful?/// I am thankful that I have a school that supports my goals to continue my precious education. School has always been something I have loved and treasured. And today marks Day Two of being back at school! It’s been over a year. I have two classes each day (A and B) am there for…
A rare disease in the USA is defined by effecting fewer than 200,000 Americans at any time “A rare disease means that there are less than 200,000 people out of the 320 million people in America have it” The Undiagnosed Disease Network (UDN) out of the National Institution of Health treats the rarest of the…
Steps Babies constantly amaze us as we watch them grow. Each ounce and step of development is seen as magical. Their first time rolling over, crawling, standing… these moments are how we all started out. It is such a satisfactory thing. We all spent our first years learning the basic skills that would fuel us…
Dear Colorado, I will forever have a piece of my heart flourishing in your mountains. You made my parents and sisters the happiest and relaxed I have seen them in a while. You filled their hearts and souls with memories to keep as long as time exists. I wanted to give you a simple letter…
Video: trim.832CA299-4B3D-4027-B8C5-AC723CC7323E I believe that coincidences are not an accident. I believe that they have a purpose and reasoning behind why they occur. These past few days have been rather stressful for my family and I. With my continuous decline in health we have been overloaded with appointments, choices to be made, infusions, lack…
Annually, we have a day to reminisce on what has happened in the past year. We countdown the minutes until the clock ticks and we unleash confetti and shouts of anticipation. It’s a joyous moment that everyone celebrates. It brings a rush of chills down your spine and makes the hairs of your arms raise.…
I believe that the most important thing in life is being with the ones that you love. Twisted Mirrors. That was the first phrase that came to my mind when I read my old blog post compared to the one that I am about to compose. My old blog post was full of the horrific…
I’m so in love with life… So in love with life. After the most emotional and ill three weeks, I am constantly thinking about how much I love this life. Three weeks ago began one of the more scary periods for my family, friends, and myself. We were working on a Prednisone taper and had…
This time of the year marks the anniversary of so many things… I like to think it is the milestone marking an anniversary of strength, hope, and perseverance. It marks a year of my family and I uniting as a group of love. Supporting each other. A year of my community rallying behind us. A…