When I think of why I share this journey it is to raise more awareness for medically complex patients and their families. That means sharing the good, and the bad. The hardest parts are when the road becomes unknown. Territory that has been uncharted. A future cased over with doubt and concern. While we…
“Finding Peace in Dance” This battle has not been an easy one…However, it has shown the beauty in finding the peace within the fight. It has shown the most love, joy, and compassion I have ever known to exist. This journey has not just impacted me, but those who love and support me. They are…
“Community is where humility and glory touch” Henri J.M. Nouwen Ever since July it’s been survival mode: trying to hold my declining health together in hopes of being healthy enough to look at other medical treatments. It’s been a form of tunnel vision trying to see a way out of this. A slippery slope of…
Medical Update: A Downward Slope I want to begin by saying a gesture: thank you. Thank you for being respectful of our privacy as we have waited to share this journey. Thank you for the constant support. Thank you for the messages when I have been quiet, checking in on me. Thank you can’t suffice,…
Dear 2017, Thank you for the immense gift of another 365 days of life. Life is the most precious thing. Your time with me has brought tidal waves of countless emotions… pain, desperation, joy, peace, gratitude, anger, fear, grief, calm… an infinite amount of emotions were experienced…