Hospital Days on Hospital Days Today mark 15 days of being away from home and being at Children’s Hospital of Wisconsin. I can not even begin to explain what a case of the hospital blues my mom and I are having. Today has been a day full of my desire to chuck my IV pole…
“…Its a Miracle…” “The Lord is close to the broken-hearted and saves those who are crushed in spirit” Psalm 34:18 I think even the strongest people have moments where enough is simply enough. Our spirits are so strong but we all need moments to just breathe. To heal for a moment. To live with a…
Hanging On Today has been yet another day of the hospital flow. Yes, that’s correct, I am in the hospital again. This journey is constantly proving to show how volatile this situation is. This Tuesday I had my appointment with the amazing Chelimsky duo at Children’s Hospital of Wisconsin. My dad, mom, and I all…
A tremendous amount of things have happened since my last blog post. It has all been a lot to think about and I honestly didn’t even know where to begin. The best way I could think of summing things up was by creating a chronological list. In my last update I discussed my new diagnosis…
Life is a crazy thing. It is so beautiful, magical, precious… It is so painful, numbing, and crushing. It tears apart every piece of you, yet creates a spectacular masterpiece of who you really are. This Monday at CHOW I had more brush strokes added to my masterpiece. I had my appointment with Dr. Kovacic,…
It feels so good to be back to updating my blog. My last post was written by my amazing Mom, as I was very ill at the time. A lot has happened since the last update… Things have been a bit crazy! Since my last post, I have been in the hospital yet again. My…
More unexpected challenges and an opportunity to share the wonderfulness of AFCH… An update from Isabelle’s Momma. These past two weeks have not gone as smoothly as we would have liked. Two steps backwards is what we have been facing.
Dear Mom, I am totally confident you know how to plant a tree. You know everything about the process, even from how the seed sprouts. You know what helps it to blossom. It is the water, nutrients, sunlight, and so much more. It is the whole “nurturing gift”. That is how I see you in…
Today I rest, I breathe, I catch up on school work, I center myself. I rest because these past few days have seemed so huge. When I think of these most recent events my mind flashes to the beginning of it all. On Tuesday I had my appointments with the Hem/Onc department at AFCH.
Emptiness Turns to Hope I have been spending a lot of time processing our visit to Nationwide. I don’t really know what to think of it… It makes me feel lost in this tornado when I try to decipher what everything meant. To say the least, it did not go at all as I expected.…